New Parent Resources

We invite you to join our community - parents, family, friends, caregivers, professionals, practitioners, researchers and organizations - dedicated to improving the quality of life for people with Down syndrome.

Networking Groups
The DSAA facilitates parent networking groups by area, demographic, age or any other criteria. Contact Kimberly Knight to be connected: [email protected].

Jack's Basket Welcome Basket
Celebrates every child born with Down syndrome and congratulates their family with gifts, support and resources. Request a basket for you or a loved one.

Growth Chart
A CDC-funded study in Pediatrics provided new growth charts in 2015 for children with Down syndrome in the United States. Families and healthcare providers can use these new charts to monitor growth among children with Down syndrome and assess how well a child with Down syndrome is growing when compared to peers with Down syndrome. 

 

New Parent Reading Materials
Welcome To Holland
Understanding a Down Syndrome Diagnosis
Down Syndrome Pregnancy, Human Development Institute at the University of Kentucky
A New Parent Handbook, DSAA
A Promising Future Together, NDSS

 

Georgia Resources
Babies Can’t Wait early intervention program
Georgia Head Start Association 
GA Department of Early Care and Learning Bright from the Start 
Georgia Parent Mentor Partnership 
Parent to Parent of Georgia
TEFRA/Katie Beckett Medicaid program
Champions For Children financial assistance and support for those that don't qualify for Medicaid
GiGi's Playhouse Atlanta Down syndrome awareness center with free programming

 

National Down Syndrome Organizations
National Down Syndrome Congress (NDSC)
NDSC is located in Atlanta but is a national organization with board members from all across the country.  They have a great website, a fantastic national public awareness campaign (“We’re More Alike Than Different”), publish a newsletter and other informational materials, and hold a national convention for families and self-advocates every summer.  The NDSC convention in 2010 will be in Orlando, Florida in July 2010.

National Down Syndrome Society (NDSS)
NDSS is located in New York, NY and has a National Policy Center in Washington, DC.  NDSS has a variety of education, research, and advocacy programs and oversees Buddy Walks across the country.

National Association for Down Syndrome (NADS)
NADS is located in Wilmette, Illinois and serves the greater Chicago area.

Global Down Syndrome Foundation
The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy.

International Mosaic Down Syndrome Association
IMDSA is designed to provide support, information and research to any family, individual or professional whose life has been affected by mosaic Down syndrome.

Association for Children with Down Syndrome
ACDS's primary headquarters is located in Plainview, New York with a second facility in Levittown, New York and serves families in those areas.

 

Online Resources
Down Syndrome Diagnosis Network (DSDN)
Jack's Basket
Brighter Tomorrows
This program, provided by the Human Development Institute, University of Kentucky, is designed to help answer your questions, educate you about Down syndrome and share the stories of other parents in similar situations.
Down Syndrome Parents Network 
DS: For New Parents 
UNO MAS!  Down Syndrome Online 
Know Me First