We invite you to join our community - parents, family, friends, caregivers, professionals, practitioners, researchers and organizations - dedicated to improving the quality of life for people with Down syndrome.
The DSAA facilitates networking groups of parents who are eager to help you along your journey. To find a networking group by area, demographics, age or any other criteria, contact Kimberly Knight: [email protected].
A CDC-funded study in Pediatrics provided new growth charts in 2015 for children with Down syndrome in the United States. Families and healthcare providers can use these new charts to monitor growth among children with Down syndrome and assess how well a child with Down syndrome is growing when compared to peers with Down syndrome. Click here to download the new charts.
New Parent Reading Materials
Understanding a Down Syndrome Diagnosis, Lettercase
Down Syndrome Pregnancy, Human Development Institute at the University of Kentucky
A New Parent Handbook, DSAA
Babies Can’t Wait
Early intervention program mandated by Part C of Individuals with Disabilities Education Act Amendments of 1997 (IDEA) provides supports and resources to assist family members and caregivers to enhance children's learning and development through everyday learning opportunities.
Georgia Parent Mentor Partnership
The Georgia Parent Mentor Partnership is an alliance of parents and professionals working together to improve outcomes for students with disabilities by enhancing communication and collaboration between families, educators and the community.
Parent to Parent of Georgia
Parent to Parent of Georgia offers a variety of services to Georgia families of children with disabilities or special healthcare needs.
Champions For Children
Champions for Children provides direct financial assistance and support services for Georgia's medically fragile and special needs children and their families, who are not eligible for the the TEFRA/Katie Beckett Medicaid program.
GiGi's Playhouse Atlanta
Down syndrome awareness center, supporting the Atlanta community by providing activities, therapy, and educational programs free of charge. Locations in Midtown and Roswell.
National Down Syndrome Organizations
National Down Syndrome Congress (NDSC)
NDSC is located in Atlanta but is a national organization with board members from all across the country. They have a great website, a fantastic national public awareness campaign (“We’re More Alike Than Different”), publish a newsletter and other informational materials, and hold a national convention for families and self-advocates every summer. The NDSC convention in 2010 will be in Orlando, Florida in July 2010.
National Down Syndrome Society (NDSS)
NDSS is located in New York, NY and has a National Policy Center in Washington, DC. NDSS has a variety of education, research, and advocacy programs and oversees Buddy Walks across the country.
National Association for Down Syndrome (NADS)
NADS is located in Wilmette, Illinois and serves the greater Chicago area.
Global Down Syndrome Foundation
The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy.
International Mosaic Down Syndrome Association
IMDSA is designed to provide support, information and research to any family, individual or professional whose life has been affected by mosaic Down syndrome.
Association for Children with Down Syndrome
ACDS's primary headquarters is located in Plainview, New York with a second facility in Levittown, New York and serves families in those areas.
Down Syndrome Diagnosis Network (DSDN)
Connects and supports families with a new diagnosis, with active online groups by birth year.
Celebrates every child born with Down syndrome and congratulates their family with gifts, support and resources.
This program, provided by the Human Development Institute, University of Kentucky, is designed to help answer your questions, educate you about Down syndrome and share the stories of other parents in similar situations.
Downsyn.com is a resource for those who love someone with Down syndrome.
UNO MAS! Down Syndrome Online
Message board for Spanish speaking families effected by Down syndrome.
Know Me First
Educational resource for families facing a diagnosis of Down syndrome.