A new study funded by the NIH INCLUDE Project will be starting up soon! It will be conducted as part of the National Institutes of Health’s Pediatric Heart Network, and aims to investigate whether having heart surgery as an infant affects the way children with Down syndrome develop and learn.
We are creating a Parent Advisory Committee for this study and are seeking parents to join! Our hope is that family members will be partners in conducting this study by providing their first-hand insight and by serving as ambassadors for the study and linking our study team with the community. Individuals on our Parent Advisory Committee would be asked to meet (by phone) and complete online surveys to help us complete activities throughout the project:
If you are interested, we ask for a brief letter that states your background/experience, and your interest in being part of the advisory committee. No previous experience is needed.
Please let us know if you have any questions! We are excited to get this group together.
Angela Lombardo, Committee Chair
Nicole Baumer, Co-Principal Investigator