The Down Syndrome Association of Atlanta has compiled a directory with a number of resources that might be of interest to individuals with Down syndrome, their families, and others. Inclusion of resources in this list is intended to be a service to our members; DSAA does not necessarily recommend or endorse any particular resource. Users are cautioned to exercise discretion regarding information and services presented here; DSAA does not promote any therapy, treatment, institution, or professional system, etc.
Down Syndrome Organizations
NDSC is located in Atlanta but is a national organization with board members from all across the country. They have a great website, a fantastic national public awareness campaign (“We’re More Alike Than Different”), publish a newsletter and other informational materials, and hold a national convention for families and self-advocates every summer. The NDSC convention in 2010 will be in Orlando, Florida in July 2010.
NDSS is located in New York, NY and has a National Policy Center in Washington, DC. NDSS has a variety of education, research, and advocacy programs and oversees Buddy Walks across the country.
NADS is located in Wilmette, Illinois and serves the greater Chicago area.
AIA is an organization of affiliate members (local Down syndrome associations) that has developed a Steering Committee and is working on the development of a Down Syndrome Trade Association. The group holds conferences for Executive Directors and Board Members and is devoted to sharing best practices. The next conference will be in Kansas City, Missouri in March 2010.
Association for Children with Down Syndrome
ACDS's primary headquarters is located in Plainview, New York with a second facility in Levittown, New York and serves families in those areas.
Downsyn.com is a resource for those who love someone with Down syndrome.
IMDSA is designed to provide support, information and research to any family, individual or professional whose life has been affected by mosaic Down syndrome.
Message board for Spanish speaking families effected by Down syndrome.
Official website for the global awareness day which has been officially observed by the United Nations since 2012.
Educational resource for families facing a diagnosis of Down syndrome.
Down Syndrome International Swimming Organization
For more information, go to http://www.dsiso.org
Special Olympics Georgia Chapter
For more information, go to http://www.specialolympicsga.org
For more information, call Susanne Conlon, GA Soccer Special Programs Director (770) 943-3858 or go to http://www.unitedfa.org/Programs/TOPSoccer/index_E.html
The North Metro Miracle League (adapted baseball using volunteer “Buddies” to help)
For more information, go to http://www.nmml.net/home.html
ALTA Foundation (Tennis)
For more information, go to http://www.altafoundation.org
Educational Reference Materials for Children with Down Syndrome
This list is not intended to be comprehensive of all books available about Down syndrome. There may be many other worthy books available. Feel free to check with other parents, your library, bookstore and the National Down Syndrome Organizations.
Woodbine House — Topics in Down Syndrome
Teaching Math to People with Down syndrome and Other Hands-On Learners
Book I: Basic Survival Skills, Author: DeAnna Horstmeier, PhD
Teaching Reading to Children with Down Syndrome
A Guide for Parents and Teachers, Author: Patricia Logan Oelwei
Early Communication Skills for Children with Down Syndrome
A Guide for Parents and Professionals, Author: Libby Kumin, PhD, CCC-SLP
Classroom Language Skills for Children with Down Syndrome
A Guide for Parents and Teachers, Author: Libby Kumin, PhD, CCC-SLP
Teaching by Design: Using Your Computer to Create Materials for Students with Learning Differences
Author: Kimberly S. Voss
Teaching Teens with ADD and ADHD
A Quick Reference Guide for Teachers and Parents, Author: Chris A. Zeigler Dendy, MS
Brookes Publishing www.brookespublishing.com
Inclusion Press www.inclusion.com
Books that Include People with Down Syndrome
Jason and Nordic Publishers — Turtle Books http://jasonandnordic.org/
Office of Special Eduation and Rehabilitative Services (OSERS) — U.S. Department of Education
For more information, go to http://www.ed.gov/about/offices/list/osers/osep/index.html?src-mr
U.S. Department of Justice — Americans with Disabilities Act (ADA)
For more information, go to http://www.usdoj.gov/crt/ada/adahom1.htm
Georgia Department of Education — Exceptional Students
For more information, go to http://www.doe.k12.ga.us/ci_exceptional.aspx
Georgia Council on Developmental Disabilities
For more information, go to http://www.gcdd.org
Below are some blogs you might find interesting (blogs listed here do not represent an endorsement of the DSAA and content contained within is entirely independent of our organization). If you would like your blog added, please submit a request here.
A Parent’s Perspective:
- Noahs Dad
- Down Syndrome; A Day to Day Guide
- Life’s Little Surprises
- Kidsenabled, providing resources to the learning differences community
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