Down Syndrome Organizations

National Down Syndrome Congress (NDSC)

NDSC is located in Atlanta but is a national organization with board members from all across the country.  They have a great website, a fantastic national public awareness campaign (“We’re More Alike Than Different”), publish a newsletter and other informational materials, and hold a national convention for families and self-advocates every summer.  The NDSC convention in 2010 will be in Orlando, Florida in July 2010.

National Down Syndrome Society (NDSS)

NDSS is located in New York, NY and has a National Policy Center in Washington, DC.  NDSS has a variety of education, research, and advocacy programs and oversees Buddy Walks across the country.

Global Down Syndrome Foundation

The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy.

National Association for Down Syndrome (NADS)

NADS is located in Wilmette, Illinois and serves the greater Chicago area.

Affiliates in Action (AIA)

AIA is an organization of affiliate members (local Down syndrome associations) that has developed a Steering Committee and is working on the development of a Down Syndrome Trade Association.  The group holds conferences for Executive Directors and Board Members and is devoted to sharing best practices.  The next conference will be in Kansas City, Missouri in March 2010.

Association for Children with Down Syndrome

ACDS's primary headquarters is located in Plainview, New York with a second facility in Levittown, New York and serves families in those areas.

Down Syndrome Parents Network

DS: For New Parents

Downsyn.com is a resource for those who love someone with Down syndrome.

International Mosaic Down Syndrome Association

IMDSA is designed to provide support, information and research to any family, individual or professional whose life has been affected by mosaic Down syndrome.

UNO MAS!  Down Syndrome Online

Message board for Spanish speaking families effected by Down syndrome.

World Down Syndrome Day – 3/21

Official website for the global awareness day which has been officially observed by the United Nations since 2012.

Know Me First

Educational resource for families facing a diagnosis of Down syndrome.